I haven't written in a while cause Ive been unsure with where we are really. Peanut is not doing very well at either school at them moment I feel like we have taken a step 12 months backwards and to be honest its breaking my heart. We have an IEP type meeting next thursday but Im really very nervous about it.
Peanut is running circles around his MS school and pretty much not doing anything he is asked this is spilling over into EI and really its just a big explosion too many Eas, too many teachers coming and going its all just too much for him and me and of corse that has an effect on Shrimples. I just want him to Snap out of it and be the little boy he was 12 weeks ago !! where is he gone he is making noise constantly having meltdowns no complience and is in his own little world 95% of the time its heart wrenching. I know this is part fo the whole AUTISM thing but really please little man just come back to us. I have never seen him this bad.
Im trying to think positivity and there has been some okay things in his communication book participation is music and sport and walking nicely in line but he is also Pushing, kicking and refusing to share with kids ( which is unlike him the violent side I mean). and today he even wet himself in the playground.
The school has no visuals in place and way to many people he is upset by noise and the Sub EA has not been seen in a while the teacher has taken 4 days out of the 9 he has been there off and he has had a different teacher every time the only constant person is the class EA whom seems lovely but completely overwhelmed .. ITS NOT WORKING FOR ANYONE !!!
I found this on Facebook today and thought it very fitting to my mood
Wednesday, 27 February 2013
Sunday, 10 February 2013
Schools Back FROM summer - Part two watch out mainstream
Part 2
Day
3
MAINSTREAM!!! OMG now Peanut has
an EA for half of the day there is a Class EA and a Class teacher and about 20
kids - So completely different set
up from Early intervention, I didn’t think I would be this nervous I have some
saint johns wort and a big mug of sugary tea ( even though I’ve been sugarless
in my hot drinks for weeks) and I still feel like throwing up He is Super excited and we walked to
school no stress (Fucking slow though
a 5 minute walk took over 15 minutes !!) unpack his bag show him where to put things and walk in he says hello to the teacher with prompting and heads over to the toys
the teacher goes over and
tells him in the morning they play with puzzles and books and no toys yet. We
got a little grumpy “ I want to
play” to which I said yes you can play with the puzzles or you can read a
book “NO!” you see the teachers recoil I go and grab him a puzzle and he
settles down. As we are playing some other boys head over to the toys and get
the same treatment and the teacher reads them a story until the music teacher
arrives that is when I made a
swift exit he said good bye and gave us a kiss and I walked away I should have
felt better but I still felt sick
and I will until I pick him up in one piece. BREATH MUMMY BREATH
Pick
up time, some other parents had made an effort to ask me how Peanut had settled
even though they had no idea who I was. I then get ushered in I walked in and
got "Oh hi mummy I had a
good day" like a little robot LOL YAAAAHH the Sub EA talked to me Peanut did super well the only moan /whine was
cause they told him to stop eating and go play! He didn't wee all day until I
got there and he didn't drink so perhaps a little stressed he wanted to sit on
the teachers chairs, they were firm with him and gave him his own chair which
he didn't like but he joined in with most things ( music and painting) and when
he wouldn't his only option was the do 1:1 learning with the EA who I’m so
bummed was a sub cause she was AMAZBALLS! (she was there all day) he showed me
a book they read and was excited to show me all the things he learnt about the
book using lots of words, he came home happy and talking up a storm! I have
never seen him come home from school this happy. He was pretend playing with Shrimples
leading the play and singing songs I’ve never heard so he must have learnt them
in music class. I’m really excited
that peer role models are just what the doctor ordered.
Day 4
Shrimples is slightly upset this morning
he does not have his hat but after explaining hats are left at school he hurries off to school to grab his
hat, he unpacks his bags and sits to does puzzles, Shrimples and another boy
sit with him. The puzzle is of a face and its missing and eyebrow so I quickly
leave before this upsets him to much and lead Shrimples to his class.
Shrimples first day was only half a day but he
turns up cute as a button and a few kids know him already and excitedly
announce his arrival, him and Earstar sat down talking about shoes and doing
puzzles and that was it I sat for a bit and then walked home.
For
me I hear you ask or I don;t hear you ask but Im just assuming you will want to hear about it or not if not Skip to the next bit.
Gym Induction and PT
session got the outfit happening
and the trendy new sports bra. I sat with the PT and we talked about
how over weight I am ummmm
lol not pleasant but I made a joke
out of most of it then she ran me through what I needed to to do I felt great
after 1.5 hours
I
have signed up for stampede with a few other crazy SN mums its running and
climbing through mud obstacles and even live electricity GO ME !! So I need to get fit I
of corse after my session was is so much pain LOL my muscles ached for a good 4 days
That
night Peanut didn’t fall asleep until 9:30 and was up at 4:50 his little brain working over drive
chatting away to himself
Day 5
Went off without a hitch Nynie arrived, we took
the boys to swimming lessons where Peanut jumped around like a wound up spring and Shrimples screamed the house
down about going the deep end.
We great weekend tiring the boys out. A lot
of Scripting from Peanut, No eye contact and little listening skills. We spent
Sunday in the lagoon and it started to get a bit better.
This morning is Monday of the new week and the
SHIT HIT THE FUCKING FAN ( I would
say mind my language but they say people who swear more are more trustworthy,
and TBH my morning was SHIT !)
Peanut was so upset to be going to Merriwa
school and not princess school I had to drag him in crying I made things worse (
as I was not in a mood to be a sn parent) I pushed him through the class room door and closed it
behind him smiling at the teacher as I quickly retreated I got to the car and a wave of awfulness
sweep over me.
I’m a SN mum I’m ment to be more understanding
more compassionate, gentler, more prepared and have 100 times thicker skin than
your average run of the mill vanilla kids mums. But I broke down tears and all
I wanted to do was run back to school and give Peanut a huge hug and make sure
he is okay. Backpacker talked me off a ledge and now I just feel like I need a stiff
drink. Tomorrow morning Backpacker
is coming with me for school drop off and we are going to reassess whats goes
on and see what we can do. Its so hard to work out what it is upsetting peanut if its a tantrum or a melt down does he understand and just not want to go? Does he not get it, its only day 1 of week 2 surely it will take some time is it the fact they don't push him at Mainstream or the the fact princess school has a better playground. Stay tuned to find out It might take a while ( if we ever do we will let you know)
Tuesday, 5 February 2013
Schools Back FROM Summer
So we have been getting Peanut ready or
School for the last few weeks, social story’s, Visual schedules, setting up a
study /therapy room for him.
This
is how it went down ….
Part
1
Day
1
So keen to start hurrying us up to get dressed and out the door and then as
soon as we got to the car park the Shit hit the fan!!! he was crying not screaming but fighting enough that I
had to carry him in and refusing to do anything asked of him the scripting was
at an all time high.
The Teacher lead him out the door at pick up time and with
a funny look on her face
I
said “ not a great day ?” and I
got a big thumbs down and “a
Scripting was High and compliance low”, We shared a chuckle “ I’m not surprised” “ Yep it will take
him time to get used to New routine”
We
got home and he was still unsettled and that’s when I start self blaming - I should of I shouldn’t have .. BLAH BLAH BLAH ( no help to any
one big old BLAH ) So we sit down and ease into the new school year with just
15 minutes of home therapy he
settles with the chance to earn some gold doubloons and Ive finally worked out
why he was so upset! He wanted to go to the school with the princess, Every
time I mentioned school he would say princess when I picked him up he said
"Hi mummy .. go princess" I had no idea what this ment until after
therapy he pointed to Clarkson crest on his Visual schedule and said "
Clarkson .. Princess up the stairs down the stairs" and Bang it hit me
Peanut was in the class for just over an hour 10 weeks ago but what did he
play with a castle a fairy princess castle !! God its hard having to be either
a mind reader or a detective but we got there in the end.
Its
all confirmed as he keeps wanting to put his Hulk t-shirt on cause it was the
t-shirt he was wearing on that day so now he thinks its his princess school
uniform LOL
Ive
told him again and again and showed him on visual schedule but although he was
listening he didn’t want to understand so Snap to
Day
2
Started off same him excited about school and me blurting out “ No princess
school today Merriwa school”
every 15 – 20 minutes,
undressed as he was searching for his hulk t-shirt ( which is in the wash) so he is walking around nudy but then after that it was pretty
uneventful he went to school without a hitch still wasn’t 100% but getting
better.
Visual Schedules
Bag Rack
Study and therapy desk
Peanuts sensory cushion
Peanut ready for his first day
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