I belong to this forum
which has some amazing members but some of the members are so obsessed with
disproving their children are autistic (Im sure most are not autistic) and proving Autism is a massively over diagnosed disorder, they
are taking the whole purpose away from the forum which is ment for parents to
come and discuss therapies,
schooling, family and friends and most importantly their children.
I don’t know if they
are right or wrong about a epidemic and I really don’t give a shit two hoots
It clearly states when
joining the forum that:
"This forum does not serve the needs
of parents with Autism. And that
discussing vaccinations, diets or sensory therapies will not be tolerated", and
its not."
So when you are going through that
evaluation phase at times it does not seem like the friendliest place to go and
its been suggested by some members that if you are seeking that assessment you have
a lot of other places to go which is all well and good but slightly
unwelcoming. Peanut has all his assessments coming up next week/month and I really don't feel like I can talk about it to them without being shut down by some of the members( again Ill say most are really lovely and fine)"
When Peanut was 2.5 we went down the
Autism route (I was pretty sure he was autistic had autism what ever you prefer to say)and were told it was unlikely
by an early intervention team. So I joined this group and all the green flag vs
red flag talk convinced me my son was not Autistic cause they, these other kids
do that and they are fine but really their kids were not my kid and I was not
looking at the big picture the whole spectrum that was Autism. Last year Sept
we went on a holiday and peanut was withdrawn, anti social, playing with the bottom of the springs on the seesaws, waking up at 3 am and grinding his
teeth we also noticed then that he does not like to turn back on himself (it’s
a bit hard to explain) but basically if your going for a walk it better be a
circle route or you will be walking for a long time. Any way I didn’t feel I could
talk to them about this I felt
like I waited
to long to have him assessed properly for a second time I really did and that
was my choice but I do think a lot of misguided information lead me to make that decision and wait as long as I did. I think sometimes I get the impression people are scared to include a psych in the evaluation process but yet they go on about getting and accurate diagnoses, how can you if the a psych is not involved? Iv actually read posts from senior members that have said "DONT NOT LET THE PSYCH DO ANY OF THE TESTING"! Why was I scared to get him assessed if I really didn't think he was autistic?
Don’t get me wrong the majority of the
members are amazing well education and they all want what’s best for their
children and I have made some great friends from it. but whether my son is or
isn’t diagnosed with Asd I don’t think it’s the place for me any more.
Its great that parents have a place to do
to talk about language disorders and delays (and there really are not enough
places for this) So I guess my question is if its states "This
forum does not serve the needs of parents with Autism" why all the Autism talk? recently it was spark by another member being banned (or as the forum moderators want to tell you she requested removal) after feeling the same way as I have expressed here. There was a pretty good discussion on the board about it but most people just did not get it, We are not bagging there judgement and we are not telling them their children are or could be autistic. We were just stating that from what you read from the forum you get a certain idea of what Autism is and how it looks and what flags are green and red, and some of these theories for instance being social and having an imagination. Its not one thing that makes your kid Autistic or not Autistic its a whole spectrum of signs. So please go out and meet kids with HFA or PDD-NOS meet their parents have a coffee and a chat. 1 or 2 things will happen
1. you will say ohh well maybe I should look into this further or 2. oh good yep there is no way my child would get a diagnoses based on what I now know, and then you can all stop worrying.
