Wednesday 27 February 2013

and then it all turned to SHIT

I haven't written in a while cause Ive been unsure with where we are really.   Peanut is not doing very well at either school at them moment I feel like we have taken a step 12 months backwards  and to be honest its breaking my heart.  We have an IEP  type meeting next thursday but Im really very nervous about it.

Peanut is running circles around his MS school and pretty much not doing anything he is asked this is spilling over into EI  and  really its just a big explosion  too many Eas, too many teachers coming and going  its all just too much for him and me  and of corse that has an effect on Shrimples.  I just want him to Snap out of it and be the little boy he was 12 weeks ago  !! where is he gone he is making noise constantly having meltdowns  no complience and  is in his own little world 95% of the time its heart wrenching.  I know this is part fo the whole AUTISM  thing but really  please little man just come back to us.  I have never seen him this bad.

 Im trying to think positivity and there has been some okay things in his communication book  participation is music and sport and walking nicely in line  but he is also Pushing, kicking and refusing to share with kids  ( which is unlike him the violent side I mean). and today he even wet himself in the playground.
 The school has no visuals in place and way to many people  he is upset by noise and  the Sub EA has not been seen in a while the teacher has taken 4 days out of the 9 he has been there off and he has had a different teacher every time the only constant person is the class EA whom seems lovely but completely overwhelmed .. ITS NOT WORKING FOR ANYONE !!!



I found this  on Facebook today and thought it very fitting to my mood


Sunday 10 February 2013

Schools Back FROM summer - Part two watch out mainstream

Part 2

Day 3 
MAINSTREAM!!!  OMG now Peanut has an EA for half of the day there is a Class EA and a Class teacher and about 20 kids  - So completely different set up from Early intervention, I didn’t think I would be this nervous I have some saint johns wort and a big mug of sugary tea ( even though I’ve been sugarless in my hot drinks for weeks) and I still feel like throwing up  He is Super excited and we walked to school no stress (Fucking slow though  a 5 minute walk took over 15 minutes !!)  unpack his bag show him where to put things and walk in  he says hello to the teacher with  prompting and  heads over to the toys  the teacher  goes over and tells him in the morning they play with puzzles and books and no toys yet. We got a little grumpy  “ I want to play” to which I said yes you can play with the puzzles or you can read a book  “NO!”  you see the teachers recoil  I go and grab him a puzzle and he settles down. As we are playing some other boys head over to the toys and get the same treatment and the teacher reads them a story until the music teacher arrives that is when  I made a swift exit he said good bye and gave us a kiss and I walked away I should have felt better but I still felt sick  and I will until I pick him up in one piece.  BREATH MUMMY BREATH

Pick up time, some other parents had made an effort to ask me how Peanut had settled even though they had no idea who I was. I then get ushered in I walked in and got "Oh hi mummy I had a good day" like a little robot LOL YAAAAHH the Sub EA talked to me Peanut did super well the only moan /whine was cause they told him to stop eating and go play! He didn't wee all day until I got there and he didn't drink so perhaps a little stressed he wanted to sit on the teachers chairs, they were firm with him and gave him his own chair which he didn't like but he joined in with most things ( music and painting) and when he wouldn't his only option was the do 1:1 learning with the EA who I’m so bummed was a sub cause she was AMAZBALLS! (she was there all day) he showed me a book they read and was excited to show me all the things he learnt about the book using lots of words, he came home happy and talking up a storm! I have never seen him come home from school this happy. He was pretend playing with Shrimples leading the play and singing songs I’ve never heard so he must have learnt them in music class.  I’m really excited that peer role models are just what the doctor ordered.

Day 4 
Shrimples is slightly upset this morning he does not have his hat but after explaining hats are left at school  he hurries off to school to grab his hat, he unpacks his bags and sits to does puzzles, Shrimples and another boy sit with him. The puzzle is of a face and its missing and eyebrow so I quickly leave before this upsets him to much and lead Shrimples to his class.
Shrimples first day was only half a day but he turns up cute as a button and a few kids know him already and excitedly announce his arrival, him and Earstar sat down talking about shoes and doing puzzles and that was it I sat for a bit and then walked home.

For me I hear you ask  or I don;t hear you ask but Im just assuming  you will want to hear about it or not if not Skip to the next bit.
Gym Induction and  PT session  got the outfit happening and the trendy new sports bra. I sat with the PT and we talked about how over weight I am  ummmm lol  not pleasant but I made a joke out of most of it then she ran me through what I needed to to do I felt great after 1.5 hours
I have signed up for stampede with a few other crazy SN mums its running and climbing through mud obstacles and even live electricity   GO ME !! So I need to get fit I of corse after my session was is so much pain  LOL my muscles ached for a good 4 days

That night Peanut didn’t fall asleep until 9:30 and was up at 4:50  his little brain working over drive chatting away to himself

Day 5
Went off without a hitch Nynie arrived, we took the boys to swimming lessons where Peanut jumped around like a wound up spring and Shrimples screamed the house down about going the deep end.

We great weekend tiring the boys out. A lot of Scripting from Peanut, No eye contact and little listening skills. We spent Sunday in the lagoon and it started to get a bit better. 

This morning is Monday of the new week and the SHIT HIT THE FUCKING FAN  ( I would say mind my language but they say people who swear more are more trustworthy, and TBH my morning was SHIT !)
Peanut was so upset to be going to Merriwa school and not princess school I had to drag him in crying I made things worse ( as I was not in a mood to be a sn parent) I pushed him through the class room door and closed it behind him smiling at the teacher as I quickly retreated  I got to the car and a wave of awfulness sweep over me.
I’m a SN mum I’m ment to be more understanding more compassionate, gentler, more prepared and have 100 times thicker skin than your average run of the mill vanilla kids mums. But I broke down tears and all I wanted to do was run back to school and give Peanut a huge hug and make sure he is okay. Backpacker talked me off a ledge and now I just feel like I need a stiff drink.  Tomorrow morning Backpacker is coming with me for school drop off and we are going to reassess whats goes on and see what we can do.  Its so hard to work out what it is upsetting peanut if its a tantrum or a melt down does he understand and just not want to go? Does he not get it, its only day 1 of week 2 surely it will take some time is it the fact they don't push him at Mainstream or the the fact princess school has a better playground.  Stay tuned to find out It might take a while ( if we ever do we will let you know)







Tuesday 5 February 2013

Schools Back FROM Summer


 So we have been getting Peanut ready or School for the last few weeks, social story’s, Visual schedules, setting up a study /therapy room for him.

This is how it went down  ….

Part 1

Day 1
So keen to start hurrying us up to get dressed and out the door and then as soon as we got to the car park the Shit hit the fan!!! he was crying not screaming but fighting enough that I had to carry him in and refusing to do anything asked of him the scripting was at an all time high. 

The Teacher lead him out the door at pick up time and with a funny look on her face 
I said “ not a great day ?”  and I got a big thumbs down  and “a Scripting was High and compliance low”, We shared a chuckle  “ I’m not surprised” “ Yep it will take him time to get used to New routine”

We got home and he was still unsettled and that’s when I start self blaming  - I should of I shouldn’t have .. BLAH BLAH BLAH   ( no help to any one big old BLAH ) So we sit down and ease into the new school year with just 15 minutes of home therapy  he settles with the chance to earn some gold doubloons and Ive finally worked out why he was so upset! He wanted to go to the school with the princess, Every time I mentioned school he would say princess when I picked him up he said "Hi mummy .. go princess" I had no idea what this ment until after therapy he pointed to Clarkson crest on his Visual schedule and said " Clarkson .. Princess up the stairs down the stairs" and Bang it hit me Peanut was in the class for just over an hour 10 weeks ago but what did he play with a castle a fairy princess castle !! God its hard having to be either a mind reader or a detective but we got there in the end.
Its all confirmed as he keeps wanting to put his Hulk t-shirt on cause it was the t-shirt he was wearing on that day so now he thinks its his princess school uniform LOL
Ive told him again and again and showed him on visual schedule but although he was listening he didn’t want to understand so  Snap to

Day 2 
Started off same him excited about school and me blurting out “ No princess school today Merriwa school”  every  15 – 20 minutes, undressed as he was searching for his hulk t-shirt  ( which is in the wash) so he is walking around nudy but then after that it was pretty uneventful he went to school without a hitch still wasn’t 100% but getting better. 


Visual Schedules

                                                                                              

Bag Rack 

Study and therapy desk 


Peanuts sensory cushion 

Peanut ready for his first day